Late at night

You know, I always feel a little guilty for staying up late at night. On one hand, it is a time where my husband and I can have some down time after the boys go to bed. On the other hand, we stay up so late! I have always been a nighthawk anyway, so I don't know what to think about this.

Tonight while tooling around on my blog, I have seen things that remind me of Glennie, and remind me of disease and pain and strength and courage. Take Jonah Williams. Jonah is a 3-month-old baby boy with Epidermolysis Bullosa. EB is an extremely rare genetic condition where pressure on the skin causes painful blisters and other problems. You can read about Jonah by clicking on the "Pray for Jonah" button on my sidebar. Many babies with this disease don't make it past one year. Jonah is a beautiful boy, with big blue eyes that remind me a little of Glennie's. Lately I have been drawn to stories of children with serious illnesses. I'm not sure why; I guess I want so much to help in some way. It's amazing to me to see such fragile-bodied children like Jonah and Glennie with such strong and courageous spirits, children who can glow and smile and laugh through what they are enduring. It is also amazing to me the lessons they can teach us and the lessons that God is trying to teach us through these precious little lives.

I don't mean to be a downer, but I really felt the need to write this post. It is at times like this when I wish I had more money or more resources so I could give it away to those who need it the most. For starts, I will pray every day for children like Jonah and their families. I know all to well what it is like to be told your baby is going to die due to a disease you have never heard of. Even if I didn't, prayer is still necessary and needed.